Who is the little Charlie Gard and because today the plug will detect

Source: Cherryx for Wikimedia Commons

The child has ten months and last autumn is admitted to the Great Ormond Street Hospital in London. He has a rare and incurable disease according to doctors, who have decided to remove the plug to avoid further suffering. Parents have activated a battle to oppose doctors, but also the use of the European Court of Rights of Man was rejected on June 27th.

The little Charlie Gard has ten months and is suffering from a rare genetic disease.

The child is admitted to the Great Ormond Street Hospital in London and, according to the doctors, the pathology of him is incurable and he is making him suffer a lot. To the small one has been diagnosed The mitochonthriar DNA depletion syndrome (MDDS), a pathology that causes a progressive muscle weakening and whose world cases are known. For this reason, doctors announced to parents the intention of detaching the machinery they keep it alive.

Charlie's parents, Chris Gard and Connie Yates, but don't give peace. They found a clinic in the United States willing to continue care to the child with an experimental treatment and have started a collection of funds to treat the child.

The Great Ormond Street Hospital opposed the transfer, addressing British justice. On 12 April the British court has given reason to the hospital, confirming the proposal of doctors to suspend care.

Chris and Connie, however, have not been surrendered and turned to the European Court of Rights of Man (Cedu). The Strasbourg Court in the expectation of a decision, ordered the hospital to continue cures.

The CEDu verdict arrived on June 27th and confirmed as established by the British courts: the suspension of care.

"We have a completely broken heart - they wrote the two parents on their facebook page, also posting several photos of them and the child -. We are not allowed to choose whether our son will live and we are not allowed to choose when and where Charlie die ".

Who is Charlie Gard


Charlie was born on August 4, 2016, apparently healthy. Due to a worsening of its clinical framework (fatigue in breathing, a little weight gain and increasingly letargic behavior) he was hospitalized at the Great Ormond Street Hospital. From that hospital he has no longer released.
The child suffers from a rare and serious illness, the MDDS, a disease that takes away the essential energy to live, until they take it to death. In the case of Charlie, his brain, his muscles and his breathing are heavily compromised. Life of him depends on a respirator. He can no longer move arms and legs and have trouble keeping his eyes open. There are no signs of a normal brain activity (he does not cry, he does not interact, he does not respond). In addition, he is deaf from birth and had several epileptic episodes. Even the heart, the liver and the kidneys are partly affected by the disease.
Parents have become aware of the existence of a form of therapy for this disease, which has however been used in patients with a less compromised clinical picture of Charlie's and with a cerebral activity. The American doctor contacted on the subject has confirmed that this therapy has not yet been tested or on mice, nor on humans with Charlie's genetic mutation. But according to him it is theoretically possible "that the child can benefit from the care.
The torque has therefore activated to start care, but received a stop by the British doctors. The hospital has in fact turned to British justice, to avoid the transfer of small to America.
In April, the judgment of the High English Court has arrived, which has established that all the doctors who visited the child are agreed in saying that any type of treatment would be useless and would not give the child and that the decision not to sleep in therapy would be the best thing to avoid further suffering to him.
A few days ago, the sentence of the ECHR, to which Charlie's parents had addressed, confirmed that of the high court, establishing that any further treatment would damage the small, causing them "continuous pain, suffering and stress" benefit.
To the child, as parents comment, later the machinery that keep it alive will be detached.

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